On reflection from…

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So, you think you know all about fibromyalgia.

OK, tell me what your understanding of fibromyalgia is…

It’s a chronic illness,

With no cure,

It’s an invisible illness; because the pain or symptoms a sufferer has are not visible.

It predominantly effects women but also some men,

What are the main symptoms?

it’s not a definitive list because fibromyalgia symptoms can be combined with other illnesses which can in some cases magnify the symptoms.

Pain throughout the whole body; the pain can vary in intensity and type.

Joints and muscles feel stiff

Poor quality of sleep

Feeling tired and fatigued

Irritable bowel syndrome (IBS)

Extreme Sensitivity

Cognitive problems, feeling confused, or dazed, sometimes called Fibro fog

Headaches

Depression

Anxiety

Painful periods

The symptoms can vary from person to person.

Symptoms can get better or worse from time to time.

Factors that influence this are:

the amount of stress you are experiencing

how much daily exercise you have

and changes in climate and temperature

How does fibromyalgia effect your daily living?

Everything I do from buying groceries, doing household cleaning, ironing clothes and cooking meals.

Using the example of household cleaning; my carer does the hoovering when it involves moving furniture. I can do some, but it varies how much I can do from day to day with fluctuating pain levels.

I wanted to reflect on my previous post partly to think about what has changed and how it can be improved.

I’m pleased that others with chronic illnesses and fibromyalgia liked my other fibromyalgia related posts. Thanks for your likes and comments, which are really encouraging.

I’ve been in situations with others not understanding what fibromyalgia/invisible illness/a chronic illness is and how it effects me.

I started my blog originally to give others some insight into what it’s like living and managing with fibromyalgia.

But, apart from surviving the constantly fluctuating illnesses and pain associated with fibromyalgia.

The main problem for me is,

getting others to understand that having 

fibromyalgia

means I have limitations on what I can do.

It’s not just one thing that’s affected

it’s everything, every day, all the time.

There’s a lot of ground to cover helping others understand what fibromyalgia is, but hopefully after reading my post you will be some way towards it.

Further information is available on the NHS website.  

If you think you may be suffering from fibromyalgia, consult your doctor or health professional.

Going back to the fact there’s no cure.  I’ve lived with fibromyalgia for 14 years and found although some times are really tough. I have been able to boost my general health through diet, exercise and meditation.

The positives are my symptoms are still there but have improved since I was first diagnosed. I can now do some hoovering!

Tell me about…Fibro Fog?

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Fibromyalgia produces a number of conditions that are part of living with an invisible illness. 

One of these is cognitive dysfunction or Fibro fog. Due to sufferers feeling confused, experiencing short term loss of memory and mixing up words.

Before I was aware I had fibromyalgia I was often told;

‘Your a scatter brain…’

‘Why do I have to keep repeating this to you…You should be able to remember…’

Usually because I’d had forgotten the time I’m meeting someone or instructions about completing a task.

I used to feel frustrated that others had fantastic memories but I had no ability to retain information.

Now I know why, I’ve been suffering from fibro fog.

It’s true most people at some time in their lives have difficulty recalling things but with fibro fog it can suddenly hit you out of the blue.

At it’s worst I’ve found myself standing in front of someone I know and chatting to them as they look familiar but I cannot remember there name or anything else about them!

That’s really embarrassing!!

Or perhaps even worse than this I’ve forgotten to take tablets I need to help me feel better.

I end up remembering to take them days afterwards and feel annoying with myself for forgetting something so obvious.

What’s causing these symptoms?

Probably the most likely explanation of this is due to poor sleep quality. Added to this fatigue and the daily routine of living with pain all contribute to the severity of Fibro fog.

How can I cope better with these symptoms?

It’s been documented that fibromyalgia restricts the blood flow to the brain. Managing pain levels by practicing some  simple relaxation exercises or meditation and mindfulness can help.

When l was first diagnosed with fibromyalgia I had great difficulty relaxing. Learning some simple relaxation exercises helped me to cope better with the pain, and gradually I’ve found my symptoms have improved. I’ve worked out ways to lower my stress levels and experimented with different techniques for improving the quality of my sleep.

Look at my posts on  meditation , mindfulness , sleep exercise and diet. These all play an important part in contributing to our general health and well-being.

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Other ways to remember important information

Making a list of tasks you must do, perhaps keeping a diary or getting a calendar to make a note of important dates.

The most important of all is to not worry about getting things wrong it’s inevitable that we will forget something important. I think we tend to overcompensate for our short comings. Better to get what we can right and accept what we cannot and move on.