For most of us, our lives are basically pretty boring and mundane.
But what if one day you woke up and everything had totally changed?
Sometimes for a brief split second we have a thought and visualise it becoming reality.
How strange and unusual it feels.
Just for a moment now,
and take yourself to that thought.
What did I think of?
I imagined I was free of fibromyalgia
and visiting the Great Barrier Reef in Australia.
I’m looking out onto a perfectly blue sea; staying in a floating hotel 🏨overlooking the reef. I’m going snorkelling around the reef; an I was getting an underwater camera 📸ready to take pictures of the coral reef and the fish.🐠🐟
How did I feel ?
Totally free and like I was visiting a giant tropical fish tank. Swimming around the coral reef, the water was warm. The coral looked like a fantasy underwater garden; the different colours changing as I swam past. 🏊♀️
I hope I have been able to illustrate how it feels to be totally free and able to do anything you want.
The opposite is true living with an invisible illness like fibromyalgia. Plans are broken all the time;
constantly letting others down because your illness is so unpredictable.
Just meeting a friend for a meal is fraught with problems.
Planning what type of food you can eat;
Could it trigger my IBS?
Does the restaurant have chairs with padded seats that are comfortable to sit on for about an hour or more?
Could it start my lower back pains if I am forced to sit on a wooden chair?
On the day I planned to go out, I woke up with pain in my head and feeling disoriented, I’m unable to drive. The meal is cancelled.
Now you are thinking;
and perhaps you’re feeling sorry for anyone with an invisible illness.
Having empathy for someone is a better response; rather than sympathy.
Or to explain this in a better way a quote from the novel,
To Kill a Mockingbird by Harper Lee
“You never really understand a person until you consider things from his point of view…until you climb in his skin and walk around in it.”
Just putting yourself in that persons shoes can give some insight into our version of living; our different view of the world we face on a daily basis.
Perhaps now you could repeat the above exercise, but this time, imagining you have fibromyalgia.
I’ll start you off with how my day can start….
You wake up and you’re legs are aching, as you move to get out of bed a muscle in your back twinges in a spasm. Your in intense pain for a moment, luckily the pain softens. You manage to get out without any other area going into spasms. As you start to get dressed your head feels achey. Your chest feels painful as well…
A great way to start the day and I’ve not got to work yet!
I read recently that the opposite is true for some people. Looking at things in a negative way motivates them more. Although I find it difficult to recommend using this technique to motivate, due to the downward spiral of thoughts it can trigger.
I have noticed that it has worked for me in the past. For instance the negative comments of others inspire me to prove them wrong. When someone says,
”You can’t achieve —————”.
”You’re be unable to complete ———“.
I will always prove them wrong and work really hard to achieve that target and surpass it.
Its a bit like us fibro warriors when we pretend to be well and not ill. We’re constantly striving to show we can do things, we want to engage in life and contribute.
To sum up, choosing the best way forward to motivate yourself is something that can be down to trial and error.
A period of experimentation could be helpful to find the way forward. Loosing weight is down to choosing the best motivational techniques for you.
OK, tell me what your understanding of fibromyalgia is…
It’s a chronic illness,
With no cure,
It’s an invisible illness; because the pain or symptoms a sufferer has are not visible.
It predominantly effects women but also some men,
What are the main symptoms?
it’s not a definitive list because fibromyalgia symptoms can be combined with other illnesses which can in some cases magnify the symptoms.
Painthroughout the whole body; the pain can vary in intensity and type.
Joints and muscles feel stiff
Poor quality of sleep
Feeling tired and fatigued
Irritable bowel syndrome (IBS)
Cognitive problems,feeling confused, or dazed, sometimes called Fibro fog
The symptoms can vary from person to person.
Symptoms can get better or worse from time to time.
Factors that influence this are:
the amount of stress you are experiencing
how much daily exercise you have
and changes in climate andtemperature
How does fibromyalgia effect your daily living?
Everything I do from buying groceries, doing household cleaning, ironing clothes and cooking meals.
Using the example of household cleaning; my carer does the hoovering when it involves moving furniture. I can do some, but it varies how much I can do from day to day with fluctuating pain levels.
I wanted to reflect on my previous post partly to think about what has changed and how it can be improved.
I’m pleased that others with chronic illnesses and fibromyalgia liked my other fibromyalgia related posts. Thanks for your likes and comments, which are really encouraging.
I’ve been in situations with others not understanding what fibromyalgia/invisible illness/a chronic illness is and how it effects me.
I started my blog originally to give others some insight into what it’s like living and managing with fibromyalgia.
But, apart from surviving the constantly fluctuating illnesses and pain associated with fibromyalgia.
The main problem for me is,
getting others to understand that having
means I have limitations on what I can do.
It’s not just one thing that’s affected
it’s everything, every day, all the time.
There’s a lot of ground to cover helping others understand what fibromyalgia is, but hopefully after reading my post you will be some way towards it.
Further information is available on theNHS website.
If you think you may be suffering from fibromyalgia, consult your doctor or health professional.
Going back to the fact there’s no cure.I’ve lived with fibromyalgia for 14 years and found although some times are really tough. I have been able to boost my general health through diet, exercise and meditation.
The positives are my symptoms are still there but have improved since I was first diagnosed. I can now do some hoovering!
This week I’m discovering why my favourite indoor plants can improve the quality of air I breathe indoors.
With improved insulation materials making our homes more energy efficient. The gases from synthetic materials and other pollutants are sealed inside our house with us.
Indoor air pollution is a major problem; as we spend a large proportion of our time indoors. Particularly those of us who suffer from illnesses like fibromyalgia.
The likelihood of developing air pollutant related illness can increase. Statistics show there has been an increase in the cases of allergies, asthma, chemical hypersensitivity and cancer due to this.
It was NASA researchers, during the 80s who discovered that plants can purify and refresh the air in sealed compartments. During their research into life support systems for missions into space. Their findings provided the evidence that plants removed volatile organic chemicals (VOCs) in a series of tests.
By introducing plants into the home the air quality is refreshed; plants act as natural air purifiers. Being in amongst nature or bringing it indoors has the added benefit of reducing stress levels.
If you work mostly indoors or in an office; buying some plants and keeping them in your environment can, in the long term improve mental and physical health.
Some of the best plants to choose are those that have a high transpiration rate; meaning they carry a larger amount of water from the roots to the leaves. They are more efficient at improving our indoor air quality.
I have chosen some easy to grow varieties for beginners:
Peace Lily (Spathiphyllum wallisii)
One of my favourites is peace lily, it’s a foliage plant and it looks attractive with it’s white flowers (spathes).
Peace lily requires semi-shade but not direct sunlight.
It’s easy to grow and look after; although not a good choice if you have pets or young children as it is extremely toxic.
Feeding is required in summer and remove dead leaves and flowers to promote new growth.
Water in summer keeping the compost moist and less watering required in winter. Misting the leaves occasionally will help to improve humidity. Keep out of cold draughts.
Spider plant (Chlorophytum comosum)
A spider plant is easy and quick to grow and look after.
It prefers a partially sunny and shady spot, and it’s ok with dry air.
Water regularly letting the soil dry before rewatering again.
In winter less watering is required and feeding with house plant food in the summer.Occasional misting in summer if it’s very hot. Dead leaves and unwanted runners can be pruned.
The spider plant produces runners on which mini plants form; these are great for propagating into new plants.
Wait until they have grown to a reasonable size and then cut off the runner. Plant on in a small pot with compost.
Common Ivy (Hedera helix)
Ivy looks very attractive with its trailing foliage.Many ivy varieties exist; including variegated versions.
Ivy is a climbing plant with aerial roots which can be trained to grow on trellis and other structures outdoors as well as indoors.
Ivy is easy to grow and care for plant.
Ivy prefers a shaded site and can be grown in full shade. Keep out of direct sunlight in summer.
Water regularly keeping compost moist and feed in summer. Regular misting in winter and summer in hot dry conditions indoors.
Dead leaves and unwanted growth can be pruned to keep it looking healthy.
Have I included any of your favourites here? If you have any suggestions please let me know.
I would like to say a hugethank you to Diane at Life on the Patiofor nominating me. If you don’t already follow Diane, have a look at her fantastic blog. Her posts are really enjoyable to read and she is a great inspiration to new bloggers like me.
I want to thank everyone who follows my blog, comments and likes my posts. It’s really encouraging to know others are interested in my posts.
Also, I must thank my family and friends who have helped me along this path.
I was really amazed when I found out I had been nominated for the Sunshine Blogger Award. It’s a great achievement for me to be nominated, being a fibromyalgia sufferer.
The Sunshine Blogger Award is a peer recognition award for bloggers who inspire, with positivity and joy.
When I started my blog, I was not sure where it would lead. I reached a very low point last year and was given the idea to start a website.
I decided to create a blog to highlight living with the invisible illness, fibromyalgia. My blog would focus on positives, negatives and overcoming these if it’s possible to. I also wanted to showcase my decoupage and art projects.
Since I started to write my blog I havegained the confidence I had lost and felt positive about life in general.
Hopefully my blog will blossom and grow and help others to understand some of the mysteries of fibromyalgia. I also hope you will continue to follow me, comment and like my posts.
Rules for the award :-
Thank the blogger who nominated you and provide a link back to their blog so that others can find them.
Add the award logo to your blog.
List the rules.
Answer the 11 questions the blogger asked you.
Nominate 11 bloggers for the award and ask them 11 new questions.
Notify the nominees about it by commenting on one of their blog posts.
* See notes below
My questions were:
1 What brings you joy?
2 Where is your “happy place”…that place you go to that gives you peace and contentment?
I practice mindful meditation to help me relax and find peace.
3 What is your favorite time of day? sunrise, mornings, afternoons, sunsets, evenings? and, what makes it your favorite?
I like mornings, hearing the birds singing very early is really special.
4 If you could change anything in the world, what would it be?
I would create a world kindness day and give everyone the day off. We would then have time to do something positive for others, stranger or not. Be it raising a smile, saying hello, or volunteering to help someone else.
5 What is your favorite subject to write about?
Poetry based on Nature.
6 What is your favorite thing to cook?
Lentil soup and soda bread on a really cold, rainy day, it’s warming and delicious.
7 Do you have a ‘bucket list’? Are you doing it?
I try not to make too many plans as I usually have to break them due to illness. I plan achievable goals to strive for in life and work.
In my blog I want to increase my readership which will enable me to educate others about living with invisible illnesses like fibromyalgia.
8 If you had to give up something in your life, what would it be?
I already have, my freedom…..due to fibromyalgia. I’m locked into a fibromyalgia body and mind.
9 Do you believe in love?
Love is spending time with people who are special to you.
10 If you won the lottery today, what’s the first thing you do?
It would depend on how much I won. If it was life changing; I would probably set up a charitable trust to help others in need.
11 What is your favorite part of being in the blogging world?
The excitement of potentially communicating to everyone in the online world. Also being nominated for the Sunshine Blogger award.
My questions for my nominees are:
1 What was your reaction when you found out you had been nominated for the Sunshine Blogger Award?
2 What motivated you to start your blog?
3 Who inspires you and why?
4 What is your best advice for a new blogger?
5 How has blogging changed you life?
6 If you could choose a world leader to answer a question. Who would you choose and what would you ask?
7 How do you think your blog has influenced others?
8 What is your favourite subject to write about?
9 Why do you think creativity is important?
10 We hear so much negativity. What would you do to encourage peace and harmony in the world?
11 Create your own question to answer.
I would love to choose everyone I follow to be nominated for this award but I could only choose 11 blogs. The blogs l have chosen to nominate vary in subject matter from the broad spectrum of Art, Artists, Books, Chronic Illness, Comedy, Craft, DIY, Fibromyalgia, Humour, Lifestyle, Motivational Speaking, Reading and Travel.
I have chosen blogs that I think in some way reflect the ‘spirit’ of the Sunshine Blogger Award.Through inspiring positivity and joy.
I have interpreted this to mean they are inspiring because of the people that are writing them.
The subject matter is positive and inspiring to others.
Or that I find them joyful to read and help to motivate me with positive thoughts.
I particularly wanted to include blogs that are written by others with fibromyalgia, invisible illnesses and chronic illness.
In life in general we are excluded from so many things because our illness limits what we can do. It’s important for me to include them in my list.
* I am going to mention any nominees who could be categorised as having a disability, or illness are exempt from having to write 11 questions, 11 answers and nominate 11 bloggers to be able to except this award.