Living an exceptional life with Fibromyalgia

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Following on from a recent post highlighting inspiring people who despite illness and injury, have lived exceptional lives.

I’m focusing on Florence Nightingale mentioned in my page about me I want to explore a bit more about her life and link to fibromyalgia. 

Florence was quoted as saying

“There is no part of my life, upon which I can look back without pain”

Florence was born on May 12, 1820, in Florence, Italy, after which she was named. She was the youngest of two children.

Florence was born into a wealthy family and was expected to get married and have a children. Florence rebelled against this stereotype. She had always helped to care for sick people and started working as a nurse.

Florence was sent to nurse injured soldiers during the Crimean War. She proved to be a very dedicated nurse; visiting the injured every evening on a regular basis which started the phrase ‘the Lady with the Lamp’.

Because of her influence in nursing practices unsanitary areas were improved which increased the survival rate of patients.

Florence wrote about her nursing techniques from experience, which formed the basics for standards in nursing care adopted for the profession.

During 1860 St Thomas’ Hospital and the Nightingale School for Nursing was opened.

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Florence and fibromyalgia

Florence suffered from an invisible illness after she returned from nursing solders in the Crimea War.

Her symptoms are reminiscent of fibromyalgia; which was not a recognised condition at the time. Florence spent prolonged periods in bed, due to her illness. This was probably triggered by excessive stress carrying out her duties nursing in terrible conditions.

In recent years soldiers from the Gulf  War have gone on to develop fibromyalgia after they returned from war. The unbearable stress they were exposed to at that time triggering fibromyalgia.

Florence died on August 13, 1910; she received the Order of Merit in 1907 for her contribution to modern nursing practices. Florence was an amazing woman who cared for others and put others health before her own.

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Easter 🐥 Greetings

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Magnolia Photo by Nick

In this Easter week I wish you peace, happiness and relaxation.

I thought I would post some photos from my walks in parks nearby.  Everything seems to be coming alive at this time of year.

The flowers and trees look so beautiful, it would be great to share them.

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White Narcissi Photo by Nick
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Park Photo by Nick
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Bluebells Photo by Nick
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Genista Photo by Nick

I’ve added a short poem based on the seasons of the apple tree.

 

Apple Tree Seasons 

 

In Spring, pink apple blossom grow delicate buds

New life springs forth

 

In Summer, fully grown blooms take shape as apples

Warm,strong sunlight help them form

 

In Autumn, rosy red, sweet tasting apples

Ready to pick from the tree

 

In Winter, a bare tree stands out amongst

White snow, goodness going back to the roots

Poem by Nick

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Keeping Active with Fibromyalgia

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Now that Spring is here and we are beginning to have lighter evenings. It’s a good time to consider reviewing your fitness and exercise regime if you have one.

After I was was diagnosed with Fibromyalgia in 2004, I found that exercise helped me a lot as I struggled to find things I could do. When you have Fibromyalgia it is a daunting prospect, keeping fit. Particularly starting out for the first time, with a new exercise.

It’s really important to keep as healthy as possible, as your level of stamina fluctuates so much.

I have made a list of everything that has helped me that you could try.

Walking

I found walking to be the most accessible and best for my circumstances.  Walking can help to boost your energy levels and enjoy nature.

If you suffer from low mood, walking on a regular basis is a good non medical therapy, to help feel more positive.

If you are on a low-income, it’s no problem to try out as there is no sign up charges.

If you are new to walking it is best to start with 5 to 10 minutes at first and gradually increase this as your body gets used to the exercise.

You will need to try out a pattern that suits you.

When you first start you may need to get some comfortable shoes and wrap up well with thermal layers on cold days.

Have a look at my post on walking  for more tips.

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Hydrotherapy

I found gentle exercise in a warm water pool can help. The water supports your body and has less impact on muscles and joints.

Research has shown that lying in warm water helps the body to relax and lowers pain perception.

A therapist that specialises in hydrotherapy or a qualified physiotherapist that has a good understanding of fibromyalgia, can help you to work out some exercises.

Your local sports centre or gym may have these facilities and let you have a couple of trial sessions.

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Pilates

Pilates strengthens the body as a whole, the main aim is to improve core strength. Regular sessions can help to reduce the risk of injury by increasing flexibility.

I  developed my own tailored exercise routine, by trying out different exercises, from visits to a physiotherapy practitioner.

If you go for physio ask the practitioner for advice and help about what exercises are best for you.

I practice these regularly once a day, for about ten minutes in total. Although, I had to work up to doing this amount gradually at first.

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Sitting Exercises

If you have limited mobility, sitting exercises could be a better option than other ways of exercise.

The NHS website has sitting exercises along with flexibility exercises that might be worth trying.

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The NHS live well  website has a lot of really useful tips to get you active.

I hope this short post has given you some new ideas on exercise for Fibromyalgia. My goal is as always to help others with Fibromyalgia and similar invisible illness.

I’m interested in hearing from any fellow sufferers of Fibromyalgia, particularly if you would like to share your experiences on my blog.

Inspiring people with illnesses and injuries

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In Britain we need to hear about an inspiring leader, at the moment, who despite personal injuries and constant illness overcame these and became a national hero.

I have fibromyalgia. What gets me through bad pain days?

After reading a Facebook post, asking fibromyalgia sufferers to swap ideas about what helps on bad pain days.

I immediately thought… chocolate. 

Then I thought…

Banish the bad if possible, like excessive stress.

My symptoms get worse on stressful days, as most people do when under pressure.

An invisible illness like fibromyalgia can mean it’s difficult to explain how we are feeling to others; especially people close to us.

It’s not like having a cold or broken leg, which over time recover. The pain and other symptoms are always there in some guise and will never go.

Its good to remind myself occasionally of the good things l can enjoy.

Perhaps making a list…

1 Chocolate!

2 Reading a gripping book

3 Writing a post

4 Chatting to friends 

5 Watching a good film

6 Walking

7 Inspiring people…..

Thinking more about this got me imagining what it might of been like for someone many years ago, who fell ill or was injured. Perhaps a famous person in history who has shown great courage and achievements, despite suffering from numerous illnesses, debilitating wounds and depression.

Vice-Admiral Horatio Nelson; a British Navy admiral, may not immediately come to mind.

Nelson is a celebrated hero in Britain for his great victories in the Napoleonic Wars and at the Battle of Trafalgar.

He was born on 29 September, 1758 at Burnham Thorpe in Norfolk. Accounts of him from the time describe a slightly built, sensitive child. Perhaps not obviously someone who would become a great courageous hero. Although early biographies describe Nelson as a brave and honourable boy. His mother died when he was just 9 which upset him for years to come. He joined the navy at the age of 12.

In his lifetime Nelson contracted malaria and survived. He was hit by musket ball distroying his arm and had it amputated. Nelson was reportedly giving orders again, after half an hour of the amputation. In 1798, Nelson lost his sight in one eye during the Battle of the Nile.

Sailing on his most famous ship called Victory, in 1805 at the Battle of Trafalgar. Nelson invented a new strategy for steering his fleet of ships. The Spanish and French fleets were trying to invade Britain. The British fleet won the Battle with Nelsons leadership but Nelson was hit by a musket ball and fatally injured. He died after hearing that his fleet had won the battle. A state funeral took place at St Paul’s Cathedral in London on January 9th, 1806.

A memorial to Nelson, named Nelsons Column stands to this day in London in the middle of Trafalgar Square.

Its inspiring to read about Nelson and visualise living on board ship back then. I visited the Nelson Museum  in Great Yarmouth, Norfolk and discovered more about him and the illnesses and injuries Nelson suffered. The most incredible thing, I thought was his heroic achievements in spite of these. 

How did he do it? 

He fought and won battles; showed incredible courage and determination to succeed. Throughout all this he described himself in a selfless way, writing in a letter;

‘I got a little hurt this morning’. Nelson had been hit in the face when a shell exploded and was blinded in the right eye.

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Dreaming about spring

 

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Spring Blossom by Nick

Whenever I think of spring it reminds me of visiting the University town of Oxford in England.

Described as the ‘city of dreaming spires’ by poet Matthew Arnold, because of the amazing architecture of the university buildings. 

It’s an inspiring place; author Lewis Carroll wrote his famous novel Alice in Wonderland here in 1862.

The story is based on a girl called Alice who follows a white rabbit into a rabbit hole and arrives in wonderland.

During her adventure she goes to a mad tea party in chapter seven, or more popularly know as the Mad Hatters tea party.

Have you ever imagined what it would be like to fall down a rabbit hole and explore wonderland for yourself? Inspired by the tea party; I’ve written my own short story based on this idea.

Two Versions of an Amazing Dream by Nick 

A strong smell of tarmac rises from the ground. 

“Yes, that blue teapot tastes good, its made from blue chocolate!” 

From a car window a teacup is thrust out,

“Lovely tea dear, one sugar or two?” 

The ground is hazy, full of green, large, grass; it smells fresh.

Food spread over the grass; doughnuts with jam, pies covered in cream and a red jelly cake with a palm tree in the middle.

A recognisable face dressed as a orange bear eating pies. Cream all over his face. A clown face looks directly at her and disappears in clouds of cream. 

“Pies everywhere I go; I can see pies raining from the sky” Cream covers her, she can feel it on her nose.

Jane looks again at a large pillow. She is awake.

***********

As Jane walks along in the park a stranger rushes up to her and says

“Yes that blue china teapot tastes good, you have a similar one to mine, it was made of blue chocolate. All I can say is it tasted good, when can you bring me another to try?”

A car pulls up next to Jane, the window winds down and a passenger passes her a cup of tea.

 “Lovely tea, dear, one sugar or two?”

Jane’s vison blurs, she shuts her eyes, opens them, and notices in front of her a mass of green, huge blades of grass. 

She is laying on the grass now and in front of her is an amazing picnic. Doughnuts oozing with jam, pies covered in cream, and a red jelly cake in the middle decorated with a pineapple. 

Her friend’s face is visible. He seems to have turned into a giant orange bear and he is hungrily tucking into a pie, covering him in cream. Next to him an inflatable clown snatches the cream pie from his hands and hurls it into the air. The clown shouts 

“Pies, Pies everywhere I go, I can see pies raining from the sky” 

The cream lands all over everything. Jane notices a large blob of cream on the end of her nose. She tries to wipe it off with a tissue and finds she can’t.

Jane moves her head and looks down at a large pillow, she is lying in bed and has woken up. What a crazy dream, did I really dream that!

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Visit to Fountains Abbey

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Fountains Abbey Photo by Nick 

My contribution to World Poetry Day is set in Fountains Abbey, Ripon, North Yorkshire.

Visit to Fountains Abbey

Long distances we have travelled,

To experience this monastic splendour,

As we arrive, on this warm September day,

Pausing at the visitor centre,

Route mapped out by a welly clad woman,

Our journey starts on its final descent,

We are unaware of what lies ahead,

Into view appears an amazing sight,

A magnificent ruined abbey,

Explorers we become at last,

Amongst colossal columns and Gothic arches,

Reaching up with dizzying heights,

Shards of brilliant white sunlight,

Shine through vast windows,

Suddenly a flock of Jackdaws take flight,

Circling the tower in swathes of blackness,

Beyond a backdrop of brilliant blue sky,

Happiness engulfs our being,

Is it possible we are experiencing reality?

Or dreaming?

Poem by Nick

For more information about visiting this world heritage site, have a look at the link below.

Fountains Abbey National Trust website

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Fountains Abbey Photo by Nick

New Decoupage Designs

I’ve just completed a few new items, all heart shaped. Each item was painted first and then covered with decoupage paper and other decorations. For further details have a look on Etsy

Decoupage Heart Shaped Box

Decoupage Wooden Heart (front and back)

Decoupage Wooden Heart (front and back)

Tell me the truth about…Cheese

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I am a cheese lover, I particularly like goats cheese for its strong unusual flavour.  In the past, I would regularly tuck into cheese sandwiches every day; selecting different cheeses to eat every week. 

I’m not in a minority enjoying cheese with around a third of us eating cheese regularly in a meal. 

The top five most popular cheeses in Britain at the moment are:

English Cheddar

Red Leicester 

Brie 

Mozzarella 

Parmesan

This trend seems to be growing with the increase in popularity of vegetarian foods recently. More people are becoming aware of the health benefits of cutting down on red meat and are also aware of the environmental impact of production processes. An appealing alternative to this appears to be cheese.

The most surprising fact is that one in ten people habitually eat a chunk of cheese as a main meal.

I’ve been trying to cut back on saturated fat intake along with my carer. Until recently I’d eaten cheese and thought it was not particularly any more fattening than any other type of food; except fruit and veggies which you can eat in abundance.

I discovered reading food labels in detail, that it is very high in saturated fats. Much higher than most red meats in fact and therefore not much help if your trying to cut back on saturated fat.

Cheese can contribute to increased levels of saturated fat in the diet fast if it’s eaten regularly. An alarming fact if you have switched to cheese recently and thought it was a healthy option to meat products.

Why is saturated fat something to be aware of in a diet?

Saturated fat in a nutshell……

Eating too much saturated fat in your diet leads to your body producing excess cholesterol which causes blood arteries to become blocked or restricted. This in turn increases the risk of cardiovascular disease which includes heart attacks, angina and strokes.

The easiest way to reduce this risk is by lessening the intake of saturated fats. There are some quick and easy ways to start making a difference. Avoid or reduce full fat dairy products such as cream or cheese (skimmed or 1% fat milk is much better than full fat milk). Also cut back on pasties, pastries, pies, cakes, chocolate, coconut milk, coconut oil and palm oil. When eating meat choose low fat meats such as chicken, turkey, venison, veal or rabbit.

In addition you can have foods that reduce cholesterol in the blood.

Soluble fibre (e.g. fruit, vegetables, oats and nuts) absorbs and carries the cholesterol out of the body.

Plant stanols or sterols inhibit cholesterol absorption in the gut. These are available in fortified foods such as Benecol.

For more information about diet and healthy eating have a look at the following website:

NHS Live well, eat well

Further details about heart disease and stroke:

British Heart Foundation information and support

Stroke Association

Look after your health and your heart….

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