What is an invisible illness?….fibromyalgia

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When I created my blog, one important aspect of this was to raise awareness of Fibromyalgia.  Since being diagnosed 14 years ago, I have found. I need to explain to everyone I meet, how fibromyalgia affects my day to day living.

Because my illness is not a visible disability, I look normal and people are sceptical about the validity of it.  In contrast, if a person with a visible illness such as a wheelchair user, drops a bag, the people around them rush over to help them.

As a fibromyalgia sufferer I have been asked…..

‘Why can’t  you do the shopping in the supermarket instead of getting your husband to do it?’  I am unable to carry heavy shopping bags and walk around a shop for that long.

‘It must be great to have such a long time away on holiday ‘  During this time I was in terrible pain and had to cancel my trip at short notice.

People judge others in a critical way sometimes. If they have no relatives or friends with a chronic illness, like fibromyalgia their understanding is limited.

I may not look in pain. I have found it easier to not complain or make others aware of it. No one wants to be around someone who is constantly moaning.

Fibromyalgia is a real medical condition, which can be referred to as a disability for some.  It causes chronic pain and fatigue throughout the whole body. The pain can be debilitating and constant. Some days it can get better or worse. It is not visible for most sufferers.

You may ask, if you know someone or meet someone with fibromyalgia. What should I do?  Showing them compassion and learning about their symptoms can help a lot. Just taking the time to talk about it with them will make a big difference.

For more information about fibromyalgia look at my other web pages and on the NHS Choices website.

 


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